Wednesday, April 2, 2008

Mild Focal Acute Cholangitis

My Gasto, Dr. Em, says he isn't sure it is PBC now, or even PCS (which the name of the "possible" diagnosis is in the PCS description, but apparently not it?). Basically, I am in the "early stages" of inflammation of the bile ducts. My tests/biopsy was sent up to OHSU now to be reviewed and will know more in 2 weeks. As much as I want to know more, understand what exactly IT is, I appreciate that Dr. Em doesn't know and is getting another opinion, instead of bluffing his way through it for more money.

I have all the early symptoms of PBC/PCS (similar symptoms, very different outcomes in the end), and will just follow along w/ the dietary changes most PBCers make. They are common sense changes, low sodium, low fat, healthy & fresh fruits & veggies, drink lots of water, exercise...all the stuff we know we are supposed to do already!

The best outcome would be an infection that isn't showing many symptoms and taking a lot of antibiotics to get rid of it out of my body, and all will be good (hopefully). The worst outcome it seems is being diagnosed w/ one of the above, in which medication will be dolled out to slow damage.

Who knew something could go wrong w/ bile ducts! There are funny names for some too, the sphincter of Oddi, Ampulla Vader...makes you feel the "force" within you, haha.

So, NO CANCER, my ultimate fear! Yeah!

Tuesday, April 1, 2008

Results are in...

and they are sitting on my Dr's desk, since early this morning! I have called twice already, but he has a bunch of appointments and procedures today. Ugh. I hope he isn't planning reading them "after hours" and getting back to me tonight, or worse yet, tomorrow! I will call again, soon, just to keep the squeaky wheel effect going.

The nurse said she doesn't know how to read them, so he has to interpret them and take notes, and then he or she will call.

And so I wait, for my fate (thank goodness it is sunny and I am feeling up today!).